Our Brandon
So this is my beautiful amazing little super hero Brandon he is 8.5years old and has a life limited condition called 1p36 chromosome deletion Brandon cannot walk talk and now cannot eat.
Brandon suffers from uncontrollable epilepsy for which he has had two 9 hour long surgeries to try and correct . Unfortunately he still has daily seizures. ..
Brandon is also fully reliant on his gastronomy for all feeds and fluid and medication intake...
Brandon has suffered from regression due to seizures which have affected him massively.. he cannot sit for long periods and cannot crawl anymore he cannot eat anymore and doesn't smile or laugh anymore even though we do sometimes get a glimpse of a smile , but despite spending most of his life in hospital this little dude is still here fighting proving everyone wrong...
We have been involved with Emily's Star for a few years now ,where we have yearly photos of our beautiful family to capture those special memories . They have provided Brandon with a few gifts and trips truly a brilliant charity and I couldn't thank the team enough 😍😍❤❤
#From one superhero to another 👄💪
Written by mum, Katie
Brandon suffers from uncontrollable epilepsy for which he has had two 9 hour long surgeries to try and correct . Unfortunately he still has daily seizures. ..
Brandon is also fully reliant on his gastronomy for all feeds and fluid and medication intake...
Brandon has suffered from regression due to seizures which have affected him massively.. he cannot sit for long periods and cannot crawl anymore he cannot eat anymore and doesn't smile or laugh anymore even though we do sometimes get a glimpse of a smile , but despite spending most of his life in hospital this little dude is still here fighting proving everyone wrong...
We have been involved with Emily's Star for a few years now ,where we have yearly photos of our beautiful family to capture those special memories . They have provided Brandon with a few gifts and trips truly a brilliant charity and I couldn't thank the team enough 😍😍❤❤
#From one superhero to another 👄💪
Written by mum, Katie